[2014]

Policy Name

Enhance HIV Data Sharing to Improve HIV Health Outcomes

Summary

The New York State Enacted Budget (FY 2014-15) included Article VII legislation to allow for enhanced data sharing among health care providers and health departments to maintain patient linkages and improve continuity and retention in care.

Background and Importance to ETE

The Ending the Epidemic Blueprint recommends using client-level data to identify and assist patients lost to care or not virally suppressed. There are many reasons that patients may be lost to care from the perspective of a particular provider or system. Since data about patients may be present in multiple, non-connected data systems such as hospital and clinic electronic medical records, insurance billing, pharmacy utilization, and surveillance, there are common instances of persons appearing lost in one system but remaining visible in others. Also, patients may move out of the jurisdiction, become incarcerated, or die from non-HIV- related causes. This legislation allows local and state health departments to share patient-specific identified information with health care providers for the purposes of patient linkage and retention in care, as approved by the health commissioner. The ability to match data and link systems to improve health outcomes will reduce inefficiencies such as using outreach workers to find someone no longer in the area or who has chosen to use a different provider. Properly cross-checked data will support the initiation of appropriate provider or public health interventions to identify those persons truly lost to care or not virally suppressed and improve their health outcomes.

Additional Information

FY 14-15 budget

Reference/Citation

Amendment of Part 63 of Title 10 NYCRR

[2016]

Policy Name

Allow HIV Data Sharing with Care Coordinators to Improve HIV Health Outcomes

Summary

Regulatory action to allow local and state health departments to share HIV surveillance information with health care providers, including entities engaged in care coordination, for purposes of patient linkage and retention in care.

Background and Importance to ETE

The Ending the Epidemic Blueprint supports changing state law to allow sharing HIV surveillance data with medical providers and care coordination systems to improve linkage and retention of HIV-infected persons in care. Including care coordination systems is an important strategy for improving retention in effective HIV care since they now play a vital role in the public health infrastructure of New York State. This amendment enables providers to improve HIV care outreach by using client-level data to identify patients lost to care.

Additional Information

Confidentiality and disclosure

Reference/Citation

Amendment of Part 63 of Title 10 NYCRR